We feel a public inquiry is needed to uncover the truth about the poor level of care at The Bristol Royal Hospital for Children. We believe vulnerable children have died due to the poor standards. We feel other children are at risk unless this is investigated.
We aim to expose the truth about the errors that are being made and the poor level of care that we feel has been covered up for many years. We aim to make sure this does not happen again.
We are calling for a public inquiry and urge families and Nursing staff to come forward to tell their story and help uncover the truth.
We are calling for Mr Robert Woolly, Cheif Executive, at University Hospital Bristol HNS Foundation Trust to stand down. How many more children must die or be harmed under his direction.
Please sign the petition requesting a public inquiry into Bristol childrens hospital to help safeguard vulnerable children. Read More
Please make contact Send Email
The Bristol review commissioned by Sir Bruce Keogh.
We need to make it clear that we the parents did not agree to the terms of reference and believed we were still in negotiations about them before their release. It is our opinion that this review will not go far enough without legal powers to properly and thoroughly reveal the failings at UHBT. We will still continue to call for a public inquiry.
It is our opinion that the review will not address accountability for children's deaths and will not investigate adequately why our children died. Luke Jenkins RCA in 2012 recommended the last 50 cardiac deaths should be investigated, this was not carried out by the trust and it's not going to be done by this review.
Investigating the deaths of children thoroughly is in our opinion the only way to truly test how accurate the data provided to Nicor is and ensure lessons are properly learnt once and for all at UHBT.
We believe this review will not properly address the poor culture and leadership of this trust as it does not go back far enough nor will it look at those persons responsible for UHBT through previous scandals.
We feel for the families who have contacted us from before 2010 who will never get answers to the questions they seek as to why their child died or were left impaired.
The families whose children were affected by the lack of high dependancy on ward 32 may never have the truth as to why HDU was not commissioned for an increasing cardiac service at a trust who knew the service was unsustainable whilst ward 32 could not cope with Children in need of a higher level of care, lack of HDU sat on the risk register yet still the trust continued to increase the number of cardiac procedures regardless. Who was responsible for this?
It is important to us that the staff who raised concerns about ward 32 to the CQC are properly recognised for doing this to protect the children in their care. Doctors and Nursing staff who continue to work hard but are often left working in difficult situations such as understaffed wards deserve recognition and we hope they will come forward and speak in confidence to the review.
For all enquiries regarding this review and for families wishing to give evidence to the review please contact:
INFORMATION WITHIN THE PUBLICS INTEREST.
PLEASE FOLLOW THE LINK TO READ MORE AND LISTEN TO A RECORDING IN WHICH UNIVERSITY HOSPITAL BRISTOL HNS TRUST ADMITS THEY HAD BEEN MISLEADING FAMILIES ABOUT HIGH DEPENDENCY BEDS. Listen Here
PLEASE FOLLOW THE LINK TO READ MORE AND LISTEN TO A RECORDING IN WHICH UNIVERSITY HOSPITAL BRISTOL HNS TRUST ADMITS LUKE JENKINS WOULD STILL BE ALIVE HAD IT NOT BEEN FOR MISTAKES MADE AT THE BRISTOL CHILDRENS HOSPITAL. Listen Here
Bristol The Relative Risk.
Robert Woolley, Cheif Executive at University Hospital NHS Foundation Trust, continues to state that Bristol is comparable with other centers. What he has failed to reveal is that Bristol is comparable with four other centers at the bottom of the ranking with more observed deaths than expected (NICOR report 8th April 2013).
Whistleblower Stephen Bolsin speaks out on Turner Inquest.
As the inquest into the death of Sean Turner approaches its conclusion, two Sunday Telegraph articles take an in-depth look at the reality for families involved in the recent series of deaths and injury at Bristol Childrens Hospital.
The following comment, posted to the Telegraph website, comes from Professor Stephen Bolsin, the whistleblower who exposed the failings at Bristol in the 1990s: Read More
South West Whistleblowers Health Action Group.
Bristol and the Francis Report. Read More
CQC has told Bristol Children's Hospital it needs to improve cleanliness standards in its operating department.
Inspectors who visited the hospital last month have published a report calling for action to improve cleanliness and infection controls. Full CQC Report
CQC has warned University Hospitals Bristol NHS Foundation Trust that it must make immediate improvements at University Hospitals Bristol Main Site.
Inspectors found that there were not enough qualified, skilled and experienced staff to meet patients’ needs.
Inspectors concluded there were inherent risks to patients health and wellbeing which the trust had been aware of for some time, but had not effectively addressed. Full CQC Report
We believe many issues have been present but have not been addresses since 2006. Read More
Experts visit Bristol Children's Hospital for review into death of 10 children.
Staffing levels at Bristol Children's Hospital will be investigated as a team of experts takes one step closer to producing a report into care and treatment of patients at the hospital. Ten children have died at the Bristol Royal Hospital for Children in the last 18 months, prompting the start of the Bristol Review last June. Read More
Family of baby who died at Bristol Children's Hospital say they weren't told of operation risks.
Avon Coroner's Court heard today that Abigail, aged four months, suffered a heart attack and was placed on life support during a fourth operation to stabilise her condition. But she failed to recover and died two days after being taken off life support at Bristol Children's Hospital. Read More
Mum had expressed fears to nurses at Bristol Children's Hospital on day baby Mia died, inquest hears.
Ms Wilton said she was also concerned about her baby's health charts but she was reassured by nurses everything was "OK". Read More
Inquest into death of daughter at Bristol Children's Hospital did not give us answers, say parents.
THE parents of 16-month-old Isabella Janew, who died after suffering a cardiac arrest at Bristol Children’s Hospital, have said they believe if staff had acted more quickly their daughter would still be alive. Read More Read More
Isabella Janew inquest: Parents' questions 'unanswered'.
The parents of a girl who died after surgery at Bristol Children's Hospital say her inquest has failed to provide them with answers about her death. Read More
Bristol Children's Hospital doctors admit giving toddler massive overdose during operation.
DOCTORS at Bristol Children’s Hospital have admitted giving a 16-month-old girl ten times the recommended dosage of adrenalin and another drug. Read More
Toddler died after blood pressure monitor was turned away by nurse who told mother looking at it 'would drive you mad', inquest told.
A toddler died after a blood pressure monitor was turned away by a nurse who told her mother that looking at it would 'drive her mad', an inquest heard today. Read More
Inquest to open into death of girl given 10 times proper dosage of adrenaline at Bristol Children's Hospital.
AN inquest opens today into the death of 16-month-old Isabella Janew, who was allegedly given ten times the proper dosage of adrenaline during a heart operation at Bristol Children's Hospital. Little Isabella, from Gloucester, died after suffering a cardiac arrest at the hospital in 2013. Her parents, Daniel and Debbie Janew, are now calling for answers from health chiefs about their baby's care. Read More
Nurse failed to call doctors as our girl died.
A nurse watched as a little girl lay dying instead of calling nearby doctors to attend to her urgently despite “clear indications” her condition was deteriorating, it has been claimed. Telegraph
Parents of toddler say Bristol Hospital tried to cover up facts.
The parents of a 16 month old girl who died after heart surgery say staff at the Bristol Children's Hospital tried to cover up what went wrong.Isabella Janew from Gloucester died in 2013 after having a procedure on her heart - something her parents say was supposed to be routine. ITV News
Baby death couple slam paramedics.
The little girl collapsed just 10 minutes after returning home with her parents following a heart procedure at Bristol Royal Hospital for Children the previous day. Read More
Inquest hears mother's emotional account of baby's hospital death.
An inquest has heard an emotional account from the mother of a baby who lost her life at Bristol Children's hospital. Four-month-old Lacey-Marie Poton suffered a cardiac arrest in July 2013. ITV News
Mum of dying baby pleaded with doctors to admit her to Bristol Children's Hospital.
A four-month-old baby died only hours after her desperate mother pleaded with emergency staff to admit her to hospital. The two-day inquest into Lacey-Marie Poton heard she was released from Bristol Children Hospital on two separate occasions on the day of her death because it was deemed her condition was not critical. Read More
Inquest is seventh to take place into care of child heart patients at Bristol Royal Hospital for Children.
After an examination, Miss Norley and partner Jhonny Poton were informed Lacey-Marie had gastroenteritis and would be discharged with Dioralyte. But just 10 minutes after returning home, Lacey-Marie went into cardiac arrest and Miss Norley had to perform CPR while an ambulance was called. Mail Online
Mother speaks of her anguish ahead of baby's inquest.
The mother of a baby girl who died after heart surgery at Bristol Children's Hospital has spoken of her anguish ahead of an inquest into her daughter's death. Four-month-old Lacey-Marie Poton suffered a cardiac arrest after she was discharged from hospital in July 2013. ITV News
Bristol Child Heart Death - Surgeons 'Had no Experience of Baby's Rare Double Heart Condition'.
An Inquest into the death of a baby boy has concluded, with issues raised over availability of beds and referral practices. These are themes that have arisen in the series of Inquests into child fatalities at Bristol Children's Hospital, and it also emerged that the Bristol surgeons had no experience of carrying out the complex procedure the patient required. Read More
Baby died following heart surgery at Bristol's Children's Hospital.
The court heard his condition rapidly deteriorated and the operation, which should have taken about 90 minutes, ended up taking over six hours. He died on 1 October 2013 after suffering a cardiac arrest, hours after his operation. Read More
Baby death probe number 11 at scandal hit University Hospitals Bristol Trust.
An NHS Trust at the centre of a major inquiry into how 10 children died in their care is being probed over the death of another baby. The scandal-hit University Hospitals Bristol Trust will face fresh questions tomorrow when an inquest opens into the death of little Rohan Rhodes. Read More
Scandal-hit Bristol Children's Hospital told grieving mum 'dead baby's medical notes were too expensive' .
Vicky, of St Austell, Cornwall, said: “I believe that unit killed my baby, just like so many of the other children. "Mia was given an 80 per cent chance of surviving the surgery – yet they were pushing to get her on to a normal ward when she wasn’t well enough.
Bristol Children's Hospital inquiry: The ten children who died or were left seriously ill.
HERE are the faces of the ten children who have either died or were left seriously ill following after-care at Bristol Children's Hospital. It was announced on Friday that Sir Ian Kennedy was to return to the city for another investigation looking into the treatment of children who died at the crisis-hit hospital between 2010 and 2013. Read More
Bristol Children's hospital deaths: Two more families come forward.
Two more families who lost children after heart surgery at Bristol's Children's Hospital have come forward to express their concerns. Harley Pascoe, from Fraddon, Cornwall, died in October aged 12 days and Mia-Leigh Snelson from nearby St Austell, died in July aged 11 days. It follows an announcement that there will be an inquiry into several deaths of children over recent years.
Heartbroken parents of children who died at scandal-hit hospital finally getting an inquiry.
NHS boss Sir Bruce Keogh has promised a full, independent review to establish why at least six children died and an unknown number suffered severe damage. Read More
Childrens Hospital Inquiry.
An inquiry will be held into the deaths of children following heart surgery at Bristol Children's Hospital. Read More
Bristol Children's Hospital: NHS Boss Orders Probe.
NHS chief Sir Bruce Keogh has ordered an independent review into Bristol Royal Hospital for Children following the deaths of newborn babies and young children. Read More
Sir Bruce Keogh agrees Bristol Children's Hospital inquiry.
An inquiry is to be held into the deaths of children following heart surgery at Bristol Children's Hospital. Read More
Jack should have recovered from heart defect - but 'nearly died TWICE at scandal-hit hospital'.
The mother of a 10-month-old baby claims he ended up brain damaged, epileptic and nearly died TWICE after bungles at the bristol royal hospital for Children. Read More
Fresh review into Bristol Childrens Hospital following recent infant deaths.
SIR Ian Kennedy who led the inquiry into the heart scandal in 1990s when 35 babies died will once again be returning to the University Hospital of Bristol Trust to lead a fresh review into a new set of infants' deaths. Read More
NHS Medical Director to meet family of heart death boy.
Sir Bruce Keogh has offered to meet the parents of Sean Turner, a child who died following neglect at Bristol's Royal Hospital for Children. Read More
Boy born with half a heart died after life-saving operation was cancelled five times in a week.
Harley Pascoe died at a scandal-hit Bristol Royal Hospital for Children - parents Danielle Gatehouse and partner Lee Pascoe were told he was 'too healthy' for an oporation. Danielle says: “We were at his bedside day in, day out, seeing him getting weaker. Yet doctors were repeatedly telling us Harley was not ill enough. Already 13 children have died or suffered severe harm since 2008 on Ward 32 – the children’s cardiac unit at the Bristol Childrens Hospital. Read More
Parents of four-year-old who died at scandal-hit hospital call for public inquiry into his care.
The parents of a four-year-old boy who died while recovering from heart surgery at a scandal-hit hospital have demanded a public inquiry into his care.
Sean Turner inquest: parents call for independent inquiry into hospital.
Coroner concludes there were 'lost opportunities' in four-year-old's care at Bristol Royal children's hospital.
Sean Turner Bristol hospital death: 'High-dependency care needed'.
A four-year-old boy who died after major heart surgery should have received high-dependency care, an inquest has heard.
Why did our baby Isabella die after routine surgery at Bristol Childrens Hospital?
ISABELLA Janew’s parents are still seeking explanations as to how their daughter died after what they say was supposed to be routine surgery. Read More
Care of boy, 4, 'below standards'.
The care given to a four-year-old boy recovering from major heart surgery on a controversial hospital ward fell below expected standards, a medical expert told an inquest today.
Sean Turner Bristol childrens hospital death: Blood monitoring 'not fully understand'
A failure to monitor a boy's blood after heart surgery may have contributed to his death, an inquest has heard.
Expert criticises care of boy who died at Bristol Children's Hospital.
BETTER treatment and monitoring of a four-year-old boy who died at Bristol Children’s Hospital would have reduced the risk of him getting the blood clot that played a major part in his death, an inquest has heard.
Nine families fight for answers on child deaths.
Bristol Royal Hospital for Children is facing three further legal claims over deaths and complications following heart operations.
New allegations over baby deaths at scandal-hit hospital.
The parents of 16-month-old Isabella Janew and four-month-old Lacey Marie Poton claim their daughters were failed by Bristol Childrens Hospital.
'We were losing him, but no one listened'.
The parents of a little boy who died after cardiac surgery at Bristol Royal Hospital for Children have told of their anguish at the 'poor treament' he received.
Luke skipped into scandal-hit hospital for routine op - 20 minutes later he was unconscious and paralysed.
His parents tell how two years later, at the same heart unit at Bristol Children Hospital, he took a devastating turn for the worse and had a fatal cardiac arrest.
'Deficiencies' in care of boy, 4 at Bristol Children's Hospital.
Senior Nurse, William Booth, said there were "deficiencies" in the care that Sean Turner received while a patient on Ward 32 at Bristol Children's Hospital.
Sean Turner Bristol hospital death: Nurse admits 'deficiencies'.
A four-year-old boy who died after heart surgery at Bristol Children's Hospital received a poor level of care, a senior nurse told an inquest..
Sean Turner Bristol hospital death: Nurse admits mistakes.
Diane Barlow was caring for Sean Turner when he suffered a cardiac arrest at Bristol Children's Hospital.
Nurse in charge of ward where boy, four, was so dehydrated he sucked moisture from wet wipes says she cannot remember what happened before he died
Sue Connor runs Ward 32 at Bristol Royal Hospital for Children
She cannot remember a procedure involving Sean Turner, who died in 2012. Another nurse caring for him admitted making potentially-fatal mistake.
The mother of four-year-old Sean Turner, who died while being treated for a heart defect, says he did not get the care he needed.
A mother whose son died at the Bristol Royal Hospital for Children claims failings in his treatment and care left him with "no chance of survival", an inquest has heard..
Dying boy 'sucked moisture out of wet wipes' on 'shambolic' ward, parents tell inquest.
A four-year-old boy who died on a "shambolic" hospital ward was so neglected that he resorted to sucking moisture out of wet wipes, his parents told an inquest today.
Parents of boy who died at Bristol childrens hospital say his care was 'a shambles'.
Four-year-old boy died on hospital ward where he was so neglected he resorted to sucking moisture out of wet wipes, inquest is told.
Boy, four, died in Bristol Childrens hospital where he was so badly neglected that he had to suck moisture out of wet wipes to rehydrate despite mother's pleas.
four-year-old boy who died on a 'shambolic' hospital ward was so neglected that he resorted to sucking moisture out of wet wipes, his parents told an inquest yesterday.
Parents battle for truth from scandal-hit hospital following death of four-year-old son.
Sean Turner’s death was followed by more at the Bristol Royal, including that of seven-year-old Luke Jenkins, who died in April 2012, just three weeks after.
Bristol Children's Hospital has been told it needs to improve cleanliness standards in its operating department.
Inspectors who visited the hospital last month have published a report calling for action to improve cleanliness and infection controls.
BBC Bristol Bristol Post Western Daily Press
A leaked hospital report has been sent to the parents of a seven-year-old boy who died after heart surgery in Bristol Children's Hospital.
The document, dated 8 May, referred to the death of Luke Jenkins and suggested poor care may have contributed to the ill health or death of their son.
BBC Bristol BBC Wales Bristol Post
Nurse asked senior staff four times to check on young boy who died after heart surgery, inquest hears.
A report, published shortly after Luke’s death, found that staff shortages were partly to blame for the tragedy.
Surgeon 'failed to visit' young boy who died after heart surgery in understaffed hospital.
The mother of a young boy who died due to a lack of hospital staff on a bank holiday weekend claimed his surgeon failed to visit him in the days after the op.
Inquest: 7 year old Luke Jenkins.
The father of a seven year old boy who died at Bristol Children's Hospital has questioned the care and staffing levels at the hospital.
Father tells of moment he watched young son die following complications from heart surgery.
Luke Jenkins died at Bristol Children's Hospital three days after suffering a cardiac arrest, an inquest heard.
Heart boy, 7, died in short-staffed ward on Easter weekend.
Nurses were 'unconcerned' over massive bleeding and didn't know where to find resuscitation equipment..
THE family of a young boy who died days after undergoing heart surgery at Bristol Children’s Hospital repeatedly raised questions about his care in the days before his death.
The death took place at the same hospital which was at the centre of the Bristol Heart Babies Scandal which made headline in the 1990s.
Inquest to probe death of boy, 7.
An inquest will take place today into the death of a seven-year-old boy who died from a cardiac arrest days after undergoing heart surgery.
Luke Jenkins: Father 'pleaded with doctors,' inquest told.
An inquest has heard how a father from Cardiff pleaded with doctors to take his seven-year-old son's condition more seriously before he died..
Calls made for Welsh Government to support parents of Bristol children's hospital scandal.
The Welsh Government was yesterday urged to take action to help families from Wales whose children died or suffered complications when being treated at the Bristol Royal Hospital for Children.
The allegations about care of babies and children in Bristol cast a dark shadow over the NHS.
A leading hospital has been accused of a catalogue of neglect and mistreatment of babies and children with heart problems.
Devastated parents will sue NHS over child deaths.
Ten families are taking legal action against a hospital trust in Bristol over alleged failings which left seven children dead, and three with disabilities. Here, three of the families tell their stories. Read More
Hospital sued over children left neglected and dying on wards.
A leading hospital has been accused of a catalogue of neglect and mistreatment of babies and children with heart problems, it is disclosed today. Read More
Families to sue over hospital deaths in Bristol.
More families are coming forward to take legal action against a hospital trust in Bristol over its treatment of babies and young children. Read More
Families of newborn babies and children who died at children's hospital take legal action against NHS trust.
University Hospitals Bristol Foundation Trust is being sued by ten distraught families after newborn babies and children died or suffered complications at the hospital. Read More
Bristol Children's hospital may face legal action.
Families claim poor care at cardiac ward and maternity unit led to deaths or damage of children admitted with heart problems.
Heart baby mum returns to Bristol hospital for protest on 20th anniversary of daughter's birth.
The mother of a baby who died during the Bristol Heart Scandal in the 90s is protesting outside the children's hospital over her concerns about the care of young cardiac patients. Read More
Heart boy's family want health boss as a witness.
THE family of a boy who died after heart surgery has asked for the chief executive responsible for Bristol Children's Hospital to be a witness at his inquest. Read More
Children's heart surgery unit criticised over lack of nurses.
Bristol Royal hospital for children has been ordered to increase staffing levels on its heart unit, after claims up to seven children died or were severely harmed there due to failings. Read More
Newborn baby died after being fed too much food.
SIX-day-old baby died after a nurse accidentally fed her a day's worth of food through a feeding tube in just one hour, an inquest heard. Maisie Waters died in Bristol Children's Hospital's paediatric intensive care unit after her intravenous feeding machine was wrongly programmed, Flax Bourton Coroner's Court was told yesterday. Read More
Heart op child deaths rise at Bristol Children's Hospital.
DEATH rates among children who have undergone heart surgery at a Bristol hospital have gone up, The Post has learned. Read More
Health watchdog issues formal warning over staffing at Bristol Children's Hospital.
The Care Quality Commission has issued a formal warning to University Hospitals Bristol NHS Foundation Trust (UHBristolNHS) in relation to staffing levels on a cardiac ward at Bristol Royal Children’s Hospital. Inspectors found that the trust had been failing to meet three essential standards of quality and safety covering staffing levels, staff training and support, and the overall care and welfare of patients. ITV Telegraph Independent BBC CQC BBC Video
Now 7 families blame hospital for deaths of their children.
SEVEN families claim their children died or were severely damaged following neglect in the care of Bristol Children’s Hospital. Read More
Parents claim they were misled following heart deaths.
The parents of two children, who died after heart surgery at the Bristol Childrens' Hospital, have told The West Country Tonight they blame inadequate aftercare. Read More
Commission to publish report into practices of Luke Jenkins hospital.
A full report into practices at a top children’s hospital is set to be published later this month following claims that neglect led to three deaths – including that of a Cardiff boy. Read More
Bristol Children's Hospital being investigated after Gloucester baby's death.
Bristol Children's Hospital is being investigated after concerns were raised by three couples whose children died there. Read More
Bristol Children's Hospital 'misled' parents over son's operation.
The family of a boy who died following heart surgery in Bristol believe the hospital misled them about the operation. Read More
Luke Jenkins Root Cause Analysis.
The Parents Perspective (Password safety1). Read More
Medical negligence law news letter.
Bristol Childrens Heart Unit Sean Turner Luke Jenkins death tragedies Bristol Press report - death tragedies of Sean Turner 4 and Luke Jenkins 7 at Bristol Childrens Heart Unit March and April 2012. Read More
Bristol Children's Hospital accused of 'showing no respect' over report into boy's death.
The parents of a seven-year-old boy who died while in a specialist children’s hospital have accused the NHS trust responsible for his death of showing them “no respect whatsoever”. Read More
Warminster family claim inept hospital care killed their son.
An under-fire children's hospital in Bristol has defended its record
after a second family claimed inept care killed their son. Read More
Lee Stone BBC Wiltshire - Bristol Children's Hospital.
Another child dies due to negligent care at Bristol Childrens Hospital. Read More
Bristol Children's Hospital faces accusations over care.
An under-fire children’s hospital has defended its record after a second family claimed inept care killed their son. Read More
Bristol Royal Hospital for Children accused by bereaved family.
An under-fire children's hospital in Bristol has defended its record after a second family claimed inept care killed their son.
Luke Jenkins: Father's anger over Bristol Hospital NHS report into boy's death.
The father of a boy from Cardiff who died following a cardiac arrest after having heart surgery has criticised a report into the circumstances surrounding his death. Read More
Bristol Royal Hospital trust boss defends its care for young heart patients.
The hospital statement in this report is misleading Sean had a complex heart condition, but was not a seriously ill child when he went into hospital, as it was a planned operation. Sean was not monitored hour by hour had he been monitored closely, Sean may not have died. Read More
Parents' fury as hospital probe reveals their son died because staff couldn't find resuscitation equipment and the surgeons were off as it was a Bank Holiday
Luke Jenkins was expected to make full recovery after undergoing corrective surgery at Bristol Children's Hospital. Read More
Bristol Children's Hospital again
More failures at Bristol children's hospital BBC Points West News Read More
Hospital on hol as our boy died
THE grieving parents of a little boy who died after heart surgery have been told bank holiday staff shortages contributed to his death. Read More
Mum wins apology after son's death at Bristol Childrens Hospital
A GLOUCESTER mum has won an apology after she says her baby son was mistreated by hospital workers in the weeks before his death. Read More
Sean Turner died at Bristol Royal Hospital for Children on the 15th of March 2012. We feel this is due to medical negligence and a poor standard of care.
Luke Jenkins died at Bristol Royal Hospital for Children on the 9th of April 2012 partly caused by low staffing levels and a poor standard of care.
Link to Luke's dedicated website www.lukejenkins.co.uk
Jack Casey almost lost his life several times and eventually he was airlifted from Bristol Childrens Hospital to Great Ormond Street Hospital in London.
Jack Casey's parents said aftercare at Bristol Royal Childrens Hospital was "not acceptable", "The care in intensive care was appalling compared to Great Ormond Street" and "We were complaining quite often because he was not given his drugs on time. It was horrific seeing him in the state he was in, left in dirty nappies, with vomit down him and he had a pressure ulcer."
Isabella Janew died in Bristol Children's Hospital aged 16 months following a catheter procedure in 2013.
On the night before surgery Isabella's Parents Debbie and Dan Janew believed staff should have checked Isabella's blood pressure, but they didn’t because a blood pressure machine wasn’t working.
“When we asked for it to be checked we were told not to worry.”
Debbie claimed: “We asked again in the morning before surgery, but the checks were never made.
“We were naturally anxious about the surgery, but we had been told beforehand that no child at Bristol had ever died from this operation.
”The surgery involved inserting a balloon into Isabella’s heart to widen the blood vessel around the valve to increase blood flow.
It was intended as a temporary measure, with valve replacement surgery to follow “sooner rather than later”.
During the operation Isabella suffered a cardiac arrest from which she never recovered.
A post mortem showed she had also bled internally.
This is how unwell Lacey- Marie looked when she was discharged from ward 32 having had a cardiac Cath procedure.
Emma Norley 20 begged for her daughter to be kept in hospital but believes she was sent home due to having been exposed to infection.
Lacey-Marie deteriorated at home and when Emma rang ward 32 to ask to take Lacey-Marie back she was told to go to the GP. The GP Surgery sent Emma to A and E at the children's hospital but again they sent her home saying it was a stomach bug. Lacey-Marie had an alleged cardiac arrest at home which Emma recalls as very frightening as she had to carry out CPR on her baby daughter. Lacey-Marie was taken back to the children's hospital but there were delays in getting a cardiologist to her.
Lacey-Marie died in July 2013.
Abbie Hattam died at Bristol children's in 2005 by a fatal overdose of 10x too much Calcium given by an overworked perfusionist during open heart surgery.
The procedure, described as "technically simple" during the inquest, was cancelled twice. It finally went ahead on May 25. Staff told the Hattams that the 90-minute operation had gone well but an hour later the hospital told them Abbie was unwell. She died the next day.
Abbie's inquest returned a verdict of unlawful killing. A police investigation followed.
A GLOUCESTER mum has won an apology after she says her baby son was mistreated by hospital workers in the weeks before his death.
Tiffany White's son Oscar Willcox died in April at nine weeks old, she believes poor standards at Bristol Children's Hospital did not help.
Miss White, said nurses on ward 32 failed to clean up his vomit or change his nappies.
She said they failed to notify her Oscar had been put on a life support machine.
And Miss White claimed staff told her he was being placed in a high dependency unit, but later discovered there were no free beds.
She praised staff at the intensive care unit, but said ward 32 had let her down.
Newborn died after mother dismissed as 'paranoid'.
Natasha McDowall’s son Jared died at St Michael's Hospital in Bristol on January 17 last year, two days after he was born by emergency caesarean section. Read More
First birthday for baby boy who was given hours to live.
His parents claim medical staff at St Michael's Hospital in Bristol failed to notice his heart rate dropping dangerously low during his birth. Read More
Review of children's heart operations to reopen.
A CONTROVERSIAL review of children's cardiac surgery will be reopened, ministers have confirmed. Read More
2001 - The Bristol heart babies scandal.
BBC News Archive - BBC reports as the story unfolded. Read More Read More
2006 - Staff shortages put paediatric cases at risk again.
Children facing heart surgery in Bristol could be at risk because of a lack of specialists, a report claims. Read More
Watchdog: Not enough staff at St Michael's Hospital.
BRISTOL maternity hospital does not have enough staff, according to the health regulator. Read More
Sunday Mirror investigation: The scandalous closure of the country's children's wards.
A string of children’s wards which have been shut down or threatened with closure since the Coalition came to power. Read More
NHS must change after inquiry into Bristol heart baby deaths.
The National Health Service was tonight bracing itself for radical reform after the report into the Bristol heart surgery scandal attacked a "club culture" among the surgeons responsible. Read More